Narrative Medicine Monday: How Storytelling Can Help Young Doctors Become More Resilient

Physician and author Dr. Jessica Zitter shows “How Storytelling Can Help Young Doctors Become More Resilient” in her recent essay in the Harvard Business Review. We know that this issue is vital to increasingly stretched and stressed medical providers, the consequences of which are discussed in previous Narrative Medicine Monday posts here and here. I wrote a short piece in Pulse for their “Stress and Burnout” issue that outlines a typical day for a modern primary care physician and have also studied and taught narrative medicine as a tool to better care for our patients and ourselves. Zitter has a unique perspective on the particular challenges for physicians and patients in end of life care, given she is board certified in both critical care and palliative care medicine.

Zitter addresses this issue through a “new program which uses storytelling to help young doctors reflect on how they handle the emotional and psychological toll of caring for suffering patients.” She opens up to a group of new physicians about running the code of a young woman in the ICU, the resistance to letting a patient go, even when nothing remains other than suffering: “We are expected to be brave, confident, and above all, to never give up.  And all the more so in particular cases, such as when a patient is young, previously healthy, or has a condition that appears reversible on admission. And in cases when our well-intended but risky interventions might have actually made things worse, it is almost impossible to let go.”

When the experienced Zitter suggests that they instead institute pain management and sedation rather than attempt resuscitation the next time her heart stops, the physicians-in-training bristle. She questions a culture that promotes doing everything, including “this technique, that intervention, a whole host of options that would never have saved this woman.” Zitter admits she gives in to the other physicians, decides to fight “to the end, the way real heroes do.” The result is tragic. “The patient died a terrible death.”

Zitter reflects on this experience and shares it in the hope that it will help other young physicians who will certainly encounter the same, given that our culture and medical training makes it so “we often feel unable to question or diverge from scripted approaches — ones which may actually cause more suffering than benefit.”

To combat this, Zitter looks to storytelling, asserting that “[d]ata show that the use of stories to process the challenging experience of being a doctor increases empathy, enhances wellness and resilience, and promotes a more humanistic health care culture.” After Zitter shares her story with the group, others begin opening up about their own experiences and a “genuine conversation proceeded, one which addressed the emotional pitfalls and psychological challenges of this work.”

Zitter is also part of a 2016 Netflix documentary called “Extremis.” This short film takes a hard look at the grueling decisions patients’ families, and the physicians who inform them, make near the end of life in the ICU. In it, you can appreciate the need to “provide safe spaces for healthcare professionals to reflect on and process their own suffering. Then we will be fully available to do the hard work of patient-centered decision making in the moments when it is really needed — at the bedside of a dying patient.”

Writing Prompt:  Have you had to help make decisions for a patient who is critically ill in the ICU? What issues came up? How was your interaction with the medical team that cared for your loved one? Alternatively, consider watching the short documentary “Extremis” and write about a moment that struck you or perhaps changed your way of thinking about end of life care. If you’re a medical professional, think of a time you witnessed an end of life situation when the patient experienced more suffering than was necessary. Do you agree that our culture contributes to performing “risky interventions” that “might have actually made things worse,” because we insist on fighting “to the end, the way real heroes do?” How do you think sharing such stories might promote wellness? Consider writing about a challenging situation from the perspective of the attending doctor, the resident, the patient, the nurse, the family member. Write for 10 minutes.

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Narrative Medicine Monday: Caring for Ms. L

Dr. Audrey Provenzano explores the difficulties in treating opioid use disorder in The New England Journal of Medicine‘s “Caring for Ms. L.” Provenzano has already developed rapport with Ms. L when one day the patient admits to her doctor that she had “taken a few of the oxycodone pills prescribed for her husband… [a]nd like a swimmer pulled into the undertow, she was dragged back into the cold, dark brine of addiction.” Ms. L is eager to try a treatment called buprenorphine but Provenzano doesn’t have the special license or training to prescribe the medication. Ms. L expresses disappointment at needing to establish care with a different provider. She trusts her doctor and doesn’t want to tell anyone else about her addiction.

Provenzano confesses that “the reason I didn’t have a waiver to prescribe buprenorphine was that I didn’t want one…. Every Friday I left the office utterly depleted, devoid of the energy or motivation it would take to spend a weekend clicking through the required online training.” She admits that more than anything, she avoids the training because she “did not want to deal with patients who needed it.” Provenzano had witnessed the toll addiction can take on a patient’s relationships and life and “[a]lready overwhelmed, I did not want to take on patients with needs that I did not know how to meet.”

Most primary care physicians can relate to Provenzano. There is already an alarming amount of burnout that exists among today’s physicians; the thought of adding another degree of complexity seems untenable to most, especially if it seems the therapeutic need is insurmountable.

Provenzano notes, though, that when Ms. L returns to her for diabetes treatment after seeing a colleague for the buprenorphine “a space had opened between us.” Ms. L doesn’t return for follow up and it is a year later that Provenzano learns that Ms. L died of an overdose. Provenzano experiences a “profound sadness” for Ms. L’s family, though “it was the shame that kept me awake.” She can’t help thinking that, given the strong patient-physician relationship they had previously developed, if Provenzano had treated Ms. L herself things might have turned out differently.

Provenzano goes on to get buprenorphine training and experiences both the therapeutic and complex social aspects of managing patients with opioid use disorder. She advocates for moving beyond just the training needed to prescribe medications for this chronic disease, but also urges us to “recognize, name, and talk about the social issues that must be addressed” and establish “team-based behavioral health and social work resources.”

Provenzano eventually finds treating patients with opioid use disorder “the most meaningful part of my practice.” She ultimately experiences great satisfaction in providing some normalcy to patients who are “roiled by overdose and estrangement.” Have you experienced the same?

Writing Prompt: As a patient, can you understand or appreciate Dr. Provenzano’s hesitation at first? If you’re a physician, have you experienced a similar hesitation? If you’ve suffered from addiction, what has been the most therapeutic intervention you’ve received? Think about an experience with addiction, either on a personal level or with a patient, that was particularly difficult. Then consider an interaction or moment that was a breakthrough. Write for 10 minutes.

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Autumn YAWP

For the second year in a row, I’m attending Centrum’s Autumn YAWP (Your Alternative Writing Program). It’s quickly becoming a favorite retreat as it’s designed just for introverted writers like me. Late morning is an optional gathering for a communal free write, the rest of the day is for your own writing, revision, reading, and exploring.

The setting is serene and includes trails, beaches and modest comfortable accommodations at Fort Worden. Nearby Port Townsend provides plenty of cafes, restaurants and a wonderful bookstore and theater.

I have specific goals for the weekend, including developing a new syllabus for a Literature & Medicine program I’m leading for physicians, working on a book proposal for a new manuscript, and final edits on a poem I plan to submit soon. Grateful for the time and spaciousness of this place to read and write and rest.

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Narrative Medicine Monday: My Human Doctor

Dr. Sara Manning Peskin writes in the New York Times about the fallibility of physicians and its emotional toll in “My Human Doctor.” Peskin introduces us to her patient, Shirley, who was given a diagnosis of multiple sclerosis. This patient finds that in assuming this chronic, often debilitating, disease, even the very word itself “crippled her. She’d stopped driving, stopped working, and adjusted to the stigma of having a chronic disease.” After a hospitalization due to a serious reaction to one of her medications, it was discovered that “Shirley might not have had multiple sclerosis at all.”

Peskin reflects that in medical training we do discuss errors but “[w]e don’t talk about the emotional trauma of hurting a patient. Instead, most physicians cope with guilt, self-doubt and fear of litigation in private. After our patients, we become ‘second victims’ of our mistakes.” Given the recent spotlight on depression and burnout in medicine, Peskin highlights an important point that we ignore to our peril. Some organizations are realizing this and offering more programs such as Balint, peer support groups, and expanded counseling services to explore and address this emotional trauma.

When Peskin suffers the consequences of a mistake made by her own physician, the response she receives is “‘I can’t turn back time.'” Peskin experiences first hand that “[a]pologies are difficult for doctors, not only because we have to cope with hurting someone, but also because we are scared of the legal implications of admitting culpability.” Peskin outlines how the U.S. system differs from many other countries, where the “‘no-fault’ system is based on injury from medical care and not on proof of physician negligence…” and “doctors and patients remain on the same side, and more patients get paid.”

Peskin does end up apologizing to her patient, Shirley, for the misdiagnosis of multiple sclerosis. They were then able to move forward in the doctor-patient relationship and discuss Shirley’s adjustment to the “possibility of not having a chronic disease.”

Writing Prompt: Think of a time your doctor made a mistake. How did they approach the error? Did they apologize? If you’re a physician, think of a mistake that you or a colleague made that is particularly memorable. What happened and how did you respond? How did the situation affect the patient-physician relationship? Consider writing about this experience from both the patient and the medical provider’s perspective. Write for 10 minutes.

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Narrative Medicine Monday: May Cause

Writer Elspeth Jensen highlights the many instructions we are confronted with when taking medications in her Bellevue Literary Review prose poem “May Cause.” Jensen’s poem accelerates throughout and hints at the absurdity of all we are told to do, not to do, of all we are advised to avoid, to look out for: “Use care when operating a vehicle, vessel, boat, until you become familiar with blurred vision, symptoms worsening, fear, or sadness.” Jensen repeats “do not” six times in this short poem. The reader, as the patient, feels the anxiety evoked by the many stipulations of being medicated.

Writing Prompt: Think of the last time you read the instructions given to you with your medication. Perhaps you still have one in your medicine cabinet. Take it out and read it in full. How many times are you told “do not?” Is anything confusing? Humorous? Did you adhere to the instructions? Why or why not? Write for ten minutes.

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Free Write Friday: Carving

She likes pulling the top off at the stem, the way it can be placed right back like a corresponding puzzle piece. She’ll use a scoop but finds more satisfaction in her bare hands, stringy innards gripped with tenacity, pulled at until they give way. She’s the one to sort through the gourd’s flesh, retrieve each slimy seed, spread them on a baking sheet to roast to nutty perfection. The five-year-old shouts a reminder to save a few seeds for his garden; he’s studying plants, learning about spiders at school.

Then, the design. A template or a copy, stolen from a previous October or a Pinterest post. She never was good at coming up with artistic inspiration on her own. A traditional cat, an astonished ghost, a toothy grin with triangular eyes. The children need help with the markings on the convex surface, the wielding of sharp tools.

They place a tealight in the bottom of the hollowed out orb, set the creations on the front porch steps. Barely evening, it’s dark already, light from the jack-o-lanterns wink at those passing by. Children satisfied with the bright orange set against Benjamin Moore’s Newburg Green, they retreat to the warmth of the indoors to sip hot cider. Cinnamon and cloves suffuse the air as they gather roasted seeds to snack.

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